Writing, Writing, and More Writing

November 17, 2013

Robert had a relatively busy weekend.  Yesterday, he went to Bridges to Independence Program, Subway Restaurant, and to Boston View trail in Blue Hill State Park. In the evening, his friend Nolan came for a short visit.  Today, Robert had an adaptive horseback riding lesson.  In the afternoon, he went for a walk to Moose Hill Audubon.   On the way home, Robert and his Dad stopped at the pet store to buy cat’s door.  After coming home, he helped his father to install it.

In the early evening, Robert completed one page with division and one with adding fractions. Then he rewrote a text replacing underlined words with their antonyms.  All three pages were exercises in being independent. Robert didn’t hesitate to work alone (while I was in the kitchen) on math problems, but not on rewriting the text.  Of course, before I left him with rewriting, he read the text and correctly changed each underlined  word into its opposite.  When, however, I left, he stopped after first copied word and waited….When I came, he resumed writing finding correct answers.  I left, he stopped again.  From the kitchen, I encouraged him to go on.  He did go ahead with writing half of a  sentence.  When I came back, he quickly, without my help finished the rewriting, each time loudly stating the word he was going to use.  He watched my reaction after each word ready to back off and try another word.

We worked a little on predicting with the help of worksheets from No Glamour Language Elementary.  First pages were easy as the predicting was mainly matching the drawings of effect with the drawings of cause.  We did that before.  Then, Robert looked at the pictures and tried to predict what MIGHT happened.  Although his thinking was correct, he had huge problems with pronunciation. Not a surprise.

We made a page with associations.  Today the theme was “Bedroom” .  Robert had to write 6 words that go together with bedroom and tell why they go together.(You sleep in the bedroom) .

Earlier, after coming from riding lesson, Robert wrote a paragraph about  the horse, Zoe.  It was easy because on the way home, we sort of , practiced those sentences by talking about the new, white horse.

In the evening, Robert wrote a paragraph about his day by listing all the activities in order.

Next task for him was to get information about what his dad and his mom did during the day.

He asked dad, “What did you do today?”  Very hard question for Robert, specially since he had to look at his dad as he was asking.  Robert asked this question five times, writing down all five activities.  When he switched to me, I shortened the question to “What did you do?” as the word “today” at the end became too much for Robert. Again he, wrote down five of my daily achievements.

I divided a page into three columns, writing at the top, MOM, ROBERT, DAD. In Robert’s column I wrote: “Went for a walk.”  Robert had to write what dad and mom were doing during the same time.  He correctly wrote that dad also went for a walk and that mom was raking leaves. There were two other similar rows and it went without problems.

Finally, Robert wrote about Nolan’s  visit.  He wrote that they ate pizza and watched Ice Age while their mothers talked and drank tea,

It seems like a lot of writing.  Not really.  For Robert all that writing was much easier than talking about the recalled events.  As he writes, the next word comes easy and the sentences complete themselves painlessly .  When he talks, every syllable is a problem.  Stringing the words together is almost impossible.

Robert was writing to  review his weekend and prepare for …talking.

About Today 9

November 15, 2013

1.  We played again The Allowance Game. This time Robert was the first to get $20 and he won.   Yesterday, we made Robert a banker who takes and gives money to all the players.  That arrangement confused Robert a lot leading him to giving others his money or taking other players money for himself.  Today, every player was his/her own banker.  It went smoothly.  He had no difficulties assembling almost mechanically small amount of money: $.45, $1.80, or $1.30.

2. We continued working on paraphrasing section of the Language Elementary  from Linguisystems. A few years ago, Robert and I went through a few first pages of many sections of the book. Now we do almost all exercises although some are difficult for Robert.  Matching synonyms wasn’t a problem, but choosing two out of three short, simple sentences with the same meaning was. Only one word was different in each sentence, so it shouldn’t be difficult to just match the sentences containing two synonyms. But it was. I am not sure why.  It might be because Robert has never before had to match sentences.  It might be because two of the sentences had synonyms, while the third one had an antonym. Robert might get distracted and not be sure if he should match opposites or synonyms.

3. We did exercises in writing.  The first was about the kitchen.  First, Robert had to complete two word- webs.  One for Things in the Kitchen and one for What we do in the kitchen. After he did that, he wrote a short paragraph about our kitchen based on the words taken from those two webs. In a second writing exercise, he wrote a few sentences about The Allowance Game.  He wrote with whom he played and that he won.  He also wrote a little about the rules of the game explaining when a player gets more money and when he/she looses them.

4. He practiced division with a reminder and changing improper fractions to mixed fractions which of course also requires division with remainder.

5. I wrote a few subtraction problems with different units requiring regrouping. Two problems to subtract hours and minutes, two to subtract feet and inches and the last two to subtract pounds and ounces.  A few times in the past Robert subtracted hours and minutes and feet and inches.  Pounds and ounces were fairly new.  The only prompt I gave Robert was to ask him, “How many ounces in one pound.”  After he answered this question without any hesitation he solved the last two problems. I was really proud.  He demonstrated ability to use the same method for different  units of measurements. As I said, I was proud.  Robert not really.  I don’t think he even noticed that he did something we had not practiced before.

Riddles

November 13, 2013
Robert and I were “playing” with riddles.  The riddles were simple and based on well known facts.  I read one to Robert, he read one to me.  He did not have any difficulties answering my riddles, but I had problems answering his.  I simply couldn’t understand half of the words he was reading. I asked him to slow down, divide words into syllables, and speak louder.  I understood one sentence but not the second or third.  I got one syllable words, but not the more “telling”ones which usually were two or three syllables long. Somehow we managed to solve all those simple, based in fact, realistic riddles.

Then came a page with the silly ones.   I did not believe that Robert who has never encountered silly riddles before was capable of understanding them.  I believed that he could solve them  choosing the answer from the word box simply by association, but I did not think that he could get the “silly” part.  I lead him through the first one.

The second and the third Robert did on his own:

“The city popular among cows.” Robert quickly chose, “Moo York”

“How the ocean says “goodbye”?” Robert chose,”It waves.”

It was clear that Robert chose “Moo York”  because it sounded as the name of his favorite place “New York” .  He chose “It waves” because of the obvious connection to ocean.

I did not feel satisfied.  I really wanted to explain to Robert, why those answers were silly.  As I was trying to figure out how to explain the funny aspect to Robert and read the clues and the answers again, I noticed that Robert’s face radiated with shy amusement.

He didn’t need explanations.  He got it.

Another Day, Another Lesson, Another Regret

November 10, 2013

Yesterday and today, Robert, his dad, and I played The Allowance Game.  As our pawns moved along the board, Robert was spending and earning money but did not feel very happy about that. Robert’s objective was clearly to move his pawn back to the starting place and end the game so he  seemed irritated that we continued to go around the board a few times. There were many things to learn during the game.

1. Learning the meaning of the word, “receive”.  Robert encountered this word, just a few minutes before the game while reading a text about how much rain different kinds of forests RECEIVE each year.  I felt obligated to “translate” it as “get”, but I was not sure if he understood this word in such context.  During the game, however, he quickly figured out, that when he stops on the field that says “RECEIVE $1, he can get one dollar.

2. Yesterday, Robert was not sure when he should return his money to the bank and when he should pay another player for buying lemonade from him/her. Today, I explained that to Robert before the game.  Since, however, his pawn never stopped on Lemonade Stand, he did not have an opportunity to demonstrate his understanding.

3.The game allowed Robert to practice counting small amount of money such as $1.35 or $0.80 and soon he had no problem with that. He had, however, problems
when change was needed.  For instance, he had to return $1.80, but he had only two one dollar bills.  Since I didn’t believe he could decide that he needed $.20 back, I helped him without really explaining that operation.

4. Mainly, however, Robert was learning to ENJOY playing board game.  His emotions oscillated from annoyance and impatience to contentment and glee. There were moments he clearly seemed happy playing the game with us.

I introduced a few games to him when he was 5, 6, or 7 years old:  Hi Ho Cherry-O, Connect Four, Potato Head.  In the private school he was attending at that time, he learned to take turns while playing  Chutes and Ladders and Candy Land. Robert followed, with more or less prompting, the rules of the games, but he clearly did not enjoy playing.  For him they were not more fun than discrete trials.  To increase “fun factor” I bought Elefun and Penguin Pile Up.  Since, however, the only people he played those games with were member of his family, who consider it obligation and not an entertainment. So despite butterflies flying out of the elephant’s trunk, and penguins sliding down the iceberg, the “fun factor”never materialized.  I was disheartened, and put the games away. A few years later we tried Operation, Trouble, and Guess Who.  Robert reluctantly complied.  so, the games returned to the shelf. As he did with memory games and puzzles. During one of the conferences on verbal behavior, I heard about Cariboo. Robert seemed engaged in playing that game and didn’t mind that he had to talk while playing. Still, there was no sign of amusement, or satisfaction. Since the game seemed  easy for Robert,  I bought another game by Cranium, Balloon Lagoon. Mistake.  There were too many games in this one.  It was hard for him (and me) to constantly switch from demands of different sections of the game board.No matter what game I introduced it was always a chore for Robert and never an entertainment. I had the same impression yesterday.  Not today, though.  Today, I observed short but multiple sparkles of joy of playing the game with us.

With those sparks of budding happiness came a realization, that over last 18 years, I (and everybody else) overemphasized rigid rules of the game and underestimate the company of other players.

Drilling and Scaffolding

There is no doubt that discrete trials helped Robert  to learn although he did not exactly reach those goals that the teachers (therapists) set for him.  At least not without modifications.  But he did learn.  Still, had he been exposed only to discrete trials, he would not progress as much as he did.

It is not surprising that discrete trials according to  the Lova’s research were mainly helpful to those students who quickly acquired language.  Language, this great tool for generalization, allowed to carry learning from one setting to another. However, for the students like Robert who were born without language,  reducing learning only to singular, miniscule drills would not lead far.  Without language, the ability to generalize across settings, (physical places, multiple situations, and different contexts) was severely limited.  And thus teaching/learning would require thousands of discrete skills to be drilled.

This dilemma was addressed by the  idea of teaching pivotal skills.  The skills that would naturally open the way for other skills to be appropriated. I learned about that concept from Laura Schreibman and her graduate students.  It is a great idea which I always kept in mind despite often not being sure  what skills would be pivotal for Robert.  In the end, I concluded that for Robert acquiring ANY skill is a gate that eases his way of learning new skill.

There are many people, and sadly many people working in the field of education, who believe that the students with mental retardation have brains with very little space for learning  and thus it is crucial that you choose only necessary, basic skills to teach, as one unimportant skill might overburden the brain and leave no room for anything else.  If, for instance, you foolishly teach multiplication you will leave no space for learning daily living skills.

My, or rather Robert’s, experience is quite the opposite.  Every time Robert learned something new, the capacity of his brain  grew larger, as if two new paths were formed. So for me  any new skill is a pivot as it opens a way to other skills.

As optimistically, as that sounds, the reality of teaching someone “without language” is much more complex.  Injecting language concepts trial after trial did not seem the answer.   Something else was needed to add another dimension to learning.

In one of my previous posts, I called it exposing Robert to new things without really expecting that he would appropriate them. I did not expect Robert to name new elements of his world or know the functions of new concepts and the ways they relate to each other.  I opted just for a spark of recognition, that would help him not feel totally lost next time he encounters similar elements in different environments.  I believed that with every exposure Robert was gaining confidence leading to  increased ability to maneuver.  Was that similar to the concept of scaffolding, the idea in education I have learned just a few months ago?  I am not sure.

But until I find something better I will continue both drilling discrete skills, through frequent and intensive practicing, and scaffolding, by guiding Robert through   new paths from their beginning to wherever they might lead.

Does He or Doesn’t He

Today, Robert did not go to school.  Every time I tried to wake him up, he responded the same way, “Five more minutes.” He got up, went to the bathroom  and returned to his bed.  He slept until 2 PM.  Maybe a little longer.  I worried.  I wanted him to be sick.  Because if he was not sick,  he was depressed.  I can deal with his sickness.  I cannot deal with his depression. He cannot share his emotions, his feelings, his confusions.

One of the aspects of Robert’s obsessive compulsive behavior is the fact that  for him the need to fulfill his real or perceived obligations trumps all his needs and wants.  Thus, I  can never tell what he wants, because he is enslaved by customs and compulsions. In particular, I never know if he wants to go to school or if he is forced to go to school by his OCD.

This dilemma presented itself most painfully in the years he had most problems in schools:  2005/2006 and 2009/2010.   It was more and more difficult to  wake him up before school.  He was getting there  later and later.  As I walked him to school, with every step his feet became heavier and slower. He was always tense.  He had this very serious expression on his face, as if he were approaching execution but determined not to waver.

Yet, he expressed the wish to go to school.  I couldn’t understand.  All signs were indicating his reluctance to get up and go to school, but his words demanded that he attends the school.

He was enslaved by what was expected of him and by what he expected of himself and unable to get out of that hold.

Now , the same thing happens again. Robert doesn’t want go to school, but he feels he has to.

I  understand why he is so unhappy there, what a bad match this classroom  is for him.  I knew he was not learning much there, now I am afraid he is pushed into depression.  That is something I simply don’t know how to deal with.

It is a year dreadfully similar to those two horrid years 2005/2006 an 2009/2010. My son is suffering for being in a classroom with teachers who still don’t know him and don’t like him.  He continues to be alone in a way nobody understands there, as if his very humanity is questioned.  He feels the lack of sincerity and continues to be confused by artificial “help”.

Even I don’t understand what he goes through.   A few observations allowed me only to see how stressed and lonely he is there, and how nobody really relates to him.

Today, he slept until 2 PM.  He was not sick after all, he was depressed.  He did not want to get up.  The same pattern from 2005/2006 the terrible year at TEC  and 2009/2010,even worse year at Norwood High School, is emerging yet again.  Robert is late for the school bus, Robert sleeps through the day, yet he still asks to go to school, unable to escape the compulsion.

I am heartbroken. I have understood two years ago that Robert learns very little at school, but today I also realized  that he is being destroyed there, the same way he was damaged in those two fatal school years.  I did not expect that.  But it happens again.  That is just too much to bear.

I know it is a chaotic post.  I am writing and trying to prevent outbursts of anger from burning  this page.  I am trying to understand why nobody is seeing what I have observed in the classroom.  I am angry and sad.

And confused.  I still cannot tell for sure,  Does he or doesn’t he want to go to school when he says , “School, school”.  I only know that he has more problems getting up in the morning and…. living.

Mind Your Words

There are errors in teaching that easily go under the radar.  They cause a great confusion on part of the learners and yet the instructor hardly notices that it was he/she who has sent baffling directions.

A few times in the past, Robert was asked to find the value of a simple expression by substituting the variable (letter) by a number.

For instance: M+7 where M=4

3F where F= 5

and so on.

He did not have problems with those demands.  He learned quickly and sailed through those problems.

So I thought that I could move to the next step and with the help of the curriculum  Momentum Math grade 7, I asked Robert to write verbally presented expressions:

3 more than a number,

5 less than a number,

Add 8 and a number,

Subtract 10 from a number.

I did not analyze what such directions meant to Robert.

Thus when he hesitated after writing, “3+….” I did not understand his confusion.

Only when he later wrote “3+3” or “3+ 8” I understood the problems.

First, since I asked him to write a number, he responded with hesitation because I did not tell him what number exactly he should write.  But he also couldn’t ask, “What number?”,  He is not capable of using language this way yet.  So he tried to guess.  The first guess was the same number he already wrote, “3”.  The second guess was the number from another problem a little above this one, “8”.

I had to explain that the word “number” in this context, meant a letter.  Even more confusing. How can a number be a letter?  Such statement went against everything I was teaching him so far.

So I backed off and decided to first replace the word “number”  with a phrase “unknown number” and ask Robert to first replace such expression with a question mark and then with an empty square. I had to rewrite all the problems:

3 more than an unknown number.

Robert replaced it with: 3+ ?

I am still thinking about the next step to avoid confusion which I caused in the first place by not understanding what my words meant to Robert.

I wonder, how many times, while talking with Robert, I also gave him directions which did not make any sense as they went against everything he had learned before?

Car Keys or Lesson Taught

Lesson Learned

On Saturday, October 12, 2013 my husband and I picked Robert from Bridges to Independence program.  We planned to spend the Columbus Day weekend in New York with Robert’s grandmother.  My husband reluctantly let me drive first and so I got in the car, put the key in the ignition and tried to turn it on.  The key did not turn.  The car did not start.  Wrong key in the wrong car.

I tried to pull the key out.

It did not get out.

Jan tried to pull the key out.

It did not get out.

Reaching from the back seat. Robert tried to pull the key out.

We did not let him.

We called AAA.  They said it was  a busy day, so they would come in 35 minutes.

From the back seat, Robert tried to reach the key.  We stopped him.  He tried again.  We stopped him again.

Pam, the instructor from Bridges to Independence Program, offered to drive us both home.  Anticipating that Robert would get more and more impatient, I gratefully accepted.

Robert was not happy.  He did not want to leave the car, the key, and his dad  in the parking lot.

Pam kept calming him down and explaining that everything would be OK.

He believed her, but to the point.

I kept explaining that everything would be fine.

Robert believed me, but …

Jan was waiting for AAA.  I kept calling AAA.

After two and a half hours, to Robert’s relief, I decided to return to Bridgewater and pick up Jan.

Soon after we returned,  three hours after initial call to AAA,  the tow truck from AAA arrived and carried our car to a dealer.  Jan, Robert and I followed in the other car.

At the dealer another problem.  Robert already accepted the fact that the wrong car was stuck in the ignition.  He could not accept however, that my husband tried to leave ANOTHER key, the correct one,  with the dealer.  Two keys for one car!  It did not seem fair or right. Oh, well, somehow we managed at 6:30 PM to get on the interstate 95 aiming for New York City.

Of course, Robert remembered.

“Car key, car key.”

“Mother made a mistake. Put a wrong key in the car.  Mechanic will fix that.”

“Car key, car key.”

“What about car key?”

“At the mechanic.”

With a few slight variations this dialogue was repeated approximately 50 times before we reached Manhattan.

Lesson Taught

Fast forward to Monday morning.

Robert and I went to the car to get a bag of freshly picked apples from the trunk.  The apples spilled all over the trunk.  I gathered them all and tried to shut the trunk.  Robert stretched his arm preventing me from doing so.  He looked at me with a mixture of scorn and disappointment.  Very serious look.

As I froze a little confused, Robert reached to the trunk and retrieved the bunch of keys from it.

He stretched then bent his arm as if he weren’t sure if he should trust me with the keys.

“I will be more careful with keys.  I promise.”

Although the skeptical look didn’t disappear from his face, Robert gave me the keys.

He thought, I learned my lesson.

Don’t Blame Students for Teachers’ Exhaustion

There is a lot of sympathy and empathy for the special ed teachers who have to deal with “difficult” students.  There is much less empathy and sympathy for those children with special needs who are deemed “challenging”.  Most people can imagine themselves in a body of a teacher working with special needs children even if they conclude that such work is beyond their abilities. Not many people are capable of picturing themselves in the skin of a child with disabilities. Even fewer of them  attempt to see the world from the perspective of a special need student WITH severe behaviors. The person (even a child) demonstrating aggressive behaviors is considered a perpetrator and thus the teacher forced to deal with such behavior is believed to be a victim.  People overwhelmingly tend to empathize with victims, and reject perpetrators.

But the children are not the ones who are in charge of the situation. They don’t control what  educational settings they are pushed into.  They don’t make decisions over applied methods,  communication strategies, presentations of topics, or  demands put on them.  Often, they cannot even find words that would approximate their feelings, needs, and wants. They cannot share  their happy or sad  experiences,  their ways of processing information, and specific ways they understand and manage their environment.

If the teachers feel exhausted, it might be because they are either not prepared or don’t get enough support.

They are not prepared to teach children with specific learning issues, because they do not get proper training and compatible experience.  They don’t get support because the administration placed too many students in the classroom, the aides are not properly assigned or trained, there are no  basic materials  needed for teaching academic, vocational, or life skills. That is not the fault of the children.  That is the fault of current methods of preparing teachers for their jobs and of the administrations that don’t provide proper resources and support.

When Robert was three years old, he managed to exhaust his teacher.  Robert was following her dropping on the floor at her feet.  He demanded the same attention she was giving him before the new student joined the classroom.  That was the typical approach in this program.  Each new student got 100% attention from the main teacher which lasted until another new student arrived.  When that happened, the student was turned loose or transferred to an aide.  Robert did not want to be passed to someone else.  He grew attached to the teacher. Too attached, one might say and thus tried to get his teacher back with all the tools he had at his disposal – following, crying, and flapping on the floor in front of the teacher.

Nobody noticed that he was not the one who CREATED this situation. He was not the one who CHANGED it.  He was “only” reacting to the environment DESIGNED by others.

A few months later he started with new teachers in a new program.  The teachers had less formal education ( Bachelor Degrees not Master Degrees) , and almost no prior experience.   But, they received training aligned with their students’ specific needs.  They knew proper methods.  They were supported by supervisors with years of experiences.

In this educational environment, Robert did not exhaust his teacher.  He did not have time. He was busy learning.

Dumbing Down

October 8, 2014

It was raining all Sunday.  Our plans for apple picking were not executable and Robert understood that too. Although he reminded us, “Apples, apples”, he didn’t insist on a trip to the orchard.  It was a day for indoor activities and a trip to a museum seemed like a good idea,  Since we had a few passes to the Planetarium in the Science Museum, I made three reservations for the show Big Bird’s Adventure: One World, One Sky. Everything went smoothly.  We got to the museum on time, got our tickets, waited in line patiently, found good seats, watched calmly, and left promptly. Maybe too promptly.

Neither Jan nor I asked Robert if he liked the show.  We both knew that Robert would answer, “Yes, yes, yes”, but he would not tell the truth.  “Yes, yes, yes” is the  answer Robert gives after every movie or show.  The only way to check if he really liked a presentation would be to ask, “Do you want to see it again?”  Then he might assertively reject or approve such opportunity.

We could ask, “Did you like the show?”, but neither Jan nor I felt like it.  We were both ashamed of our choice.  The show was for very little children.  Not for 21 years old  man.  We were dumbing Robert down.  He was clearly bored, the same way we, his parents, were.

Why then I chose this show out of the three presented in the Planetarium?

Well, I thought it would be easier to get Robert readjusted to the place, by presenting him with something… simpler.  But why I even thought that he would need readjustment? He was in the planetarium before, although a few years before this visit.  He was, also, a frequent visitor to OMNI theater.  Just this September, he visited it twice to see a documentary about Canadian railroad and a beautiful film about Jerusalem.  He loved both presentations. He behaved perfectly.

There is really no logical explanation except admitting that maybe deep down, we, the parents, are as prejudicial in regards to Robert’s abilities  as some (SOME) of his teachers and  school administrators are.